About

AdrenoleukodystrophySupport.org is a dedicated patient-to-patient support community for families affected by Adrenoleukodystrophy.

Adrenoleukodystrophy Support is powered by BensFriends.org, patient support communities for rare diseases, and is run by volunteer moderators who have been affected with ALD.

What is Adrenoleukodystrophy?

Adrenoleukodystrophy (ALD) is a rare, genetic disorder that leads to brain damage and failure of the adrenal glands. It affects the body’s nervous system, causing the weakening and failure of the nerve impulse; thus leading to disability.

Who can join Adrenoleukodystrophy Support?

If your family has been affected by Adrenoleukodystrophy, consider Adrenoleukodystrophy Support as your second home. Adrenoleukodystrophy Support, as well as the rest of BensFriends.org’s patient communities, is free for members to join.