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If your family has been affected by Adrenoleukodystrophy (ALD), consider Adrenoleukodystrophy (ALD) Support Network your second home.


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What is Adrenoleukodystrophy?

Adrenoleukodystrophy (ALD) is a rare, genetic disorder that leads to brain damage and failure of the adrenal glands. It affects the body’s nervous system, causing the weakening and failure of the nerve impulse; thus leading to disability.

Adrenoleukodystrophy (ALD) is a disorder of peroxisomal fatty acid beta oxidation which results in the accumulation of very-long chain fatty acids in tissues throughout the body.  Clinically, ALD is a heterogenous disorder, presenting with several distinct phenotypes, and no clear pattern of genotype-phenotype correlation. As an X-linked disorder, ALD presents most commonly in males, however approximately 50% of heterozygote females show some symptoms later in life. Approximately one-third of ALD patients will present with the childhood cerebral form of the disease, which is the most severe form.


How is everyone?

Started by dancermom in General Discussions. Last reply by dancermom 23 hours ago. 8 Replies

It's been awhile since we have heard from some of you. Now is a good time to check in, say hello to our newer members, and tell us how you are and what is on your minds. I hope to hear from you soon.Continue

Too good to be true?

Started by dancermom in General Discussions yesterday. 0 Replies

On the Internet, sometimes something can look like a medical breakthrough, but may not be as it appears. For instance, if you read this article written by a biotech startup company, you might think that a cure for ALD is right around the corner.…Continue

A little help from ALDLife

Started by dancermom in General Discussions Nov 15. 0 Replies

I am posting this information from the ALDLife website in case it may be beneficial for some of you, particularly the financial assistance program:07 November 2014 – Financial support. It is essential for some families suffering from ALD and AMN, as…Continue

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Latest Activity

dancermom replied to dancermom's discussion How is everyone?
"If you post a discussion requesting information, I can send a message about it to all of our…"
23 hours ago
karthikeyan replied to dancermom's discussion How is everyone?
"Fine, I wont share again Kindly share regarding ALD, in my Home town - there is no info or medical…"
23 hours ago

dancermom's 3 discussions were featured
23 hours ago

dancermom posted discussions
23 hours ago

Top Content 

1 How is everyone?

How is everyone?

Posted by dancermom on November 21, 2014

2 FYI: SCT trial in Boston, UCLA, and MN is still recruiting

FYI: SCT trial in Boston, UCLA, and MN is still recruiting

Posted by dancermom on November 22, 2014

3 Too good to be true?

Too good to be true?

Posted by dancermom on November 21, 2014


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Ben's Friends Monthly Newsletter - October 2014 Issue

Posted by Ben on October 25, 2014 at 9:25am 0 Comments

Just the Stats:

Communities: 38

Friends: 43,500+

Connecting to others in a similar circumstance is helpful to decrease depression, anxiety,…




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