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If your family has been affected by Adrenoleukodystrophy (ALD), consider Adrenoleukodystrophy (ALD) Support Network your second home.
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Adrenoleukodystrophy (ALD) is a rare, genetic disorder that leads to brain damage and failure of the adrenal glands. It affects the body’s nervous system, causing the weakening and failure of the nerve impulse; thus leading to disability.
Adrenoleukodystrophy (ALD) is a disorder of peroxisomal fatty acid beta oxidation which results in the accumulation of very-long chain fatty acids in tissues throughout the body. Clinically, ALD is a heterogenous disorder, presenting with several distinct phenotypes, and no clear pattern of genotype-phenotype correlation. As an X-linked disorder, ALD presents most commonly in males, however approximately 50% of heterozygote females show some symptoms later in life. Approximately one-third of ALD patients will present with the childhood cerebral form of the disease, which is the most severe form.
ANNOUNCING OUR ANNUAL BENS FRIENDS FUNDRAISER!!All of our patient communities are banding together to raise funds by creating their own fundraising pages and engaging their friends, family, and community to support Ben's Friends. The money will help…Continue
Wishing you a lovely holiday season!Sincerely, Tracey and DancermomContinue
Hi All, My name is Penny, we have an adult son that was diagnosed withALD after a traumatic brain injury. Actually the brain injury became a blessing, through the many doctors and rehabs he went to, it was recommended that we look into ALD. He had…Continue
Governor Jerry Brown Signs Bill to Screen Newborns for ALD(September press release from the Myelin Project: http://www.pr.com/press-release/584040)Governor Jerry Brown signed Assembly Bill 1559…Continue
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